I am Nicky and was diagnosed with Burkitt’s in March 2011. I will keep this simple. I had been sick 5 months before they found my mass, located in the center of my chest. I kept going back and forth to dr and er. They kept saying bronchitis, viral infection, bronchitis and laryngitis. I lost my voice and breathing was difficult I would cough in fits for hours too the point I was peeing my pants, lol. I can laugh now at that but and the time it was just horrible. Finally left work wheezing when I breathed, my dr told me to report to the ER. From that point on my life was forever changed. There was a mass in the center of chest 26 percent of my body. Paralyzed my voice chord, cutting off my trachea, pressing into my aorta. I live alone, my children grown adults. I went through six months if inpatient chemo therapy, hyper C VAD with rituxin. Emergency pulmonary and Thoracic teams went in for biopsy’s. I had multiple blood and platelet transfusions, port infections neutropenic fevers and spent about four plus months in the hospital. All this said I am two years out and still here. Thank you GOD, my Dr. Kuriakose, all my wonderful P2 nurses and my great son, niece and father. I now ask you too please help me as I have depression and feel very separate from the world. I have been back to work one year but have missed about five months ofthat . I cannot adjust back in very well, stress I cannot handle and feel very alone. I need a routine and too be at work . I had several clear scans but the last two shown activity in my neck. It’s still in the gray area as they say so that is good. I just feel like I am outside of the circle looking in at the world not knowing where I fit anymore.:(
Submitted by; Nicky
Nicky, your story and ability to fight and win is an inspiration. Look for buckets to fill (you’ve filed mine today) and your life will continue to improve. Bless you for sharing your story.